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Polymyositis

This category contains 8 posts

Free American Autoimmune Association Forum to Feature Autoimmune Experts

Newswise — Portland, OR – June 26, 2012: The American Autoimmune Related Diseases Association (AARDA) is hosting a “What Every American Needs to Know About Autoimmune Disease” forum on Saturday, August 4th , 2012. The event will be held at Oregon Health Sciences University’s Doernbecher Children’s Hospital in the Vey Conference Center on the 11th … Continue reading

Buh-Bye Prednisone

By Nicole Shine Great news! My husband’s dermatomyositis is almost in remission! Dr. Louie, the specialist we saw today at Johns Hopkins, said their tests showed little sign of the disease. I was also heartened to learn that that their Myositis Center treats 400 dermatomyositis patients–the most of any medical center in the U.S. If … Continue reading

Meeting With Autoimmune Specialists at Johns Hopkins

By Nicole Shine I’m here Baltimore, Md., with my husband, who has the autoimmune disease dermatomyositis,  so he can be tested–and hopefully treated–by the specialists at Johns Hopkins Myositis Center. Back home, he’s been under the care of a rheumatologist, Dr. N, who acknowledged that my husband is one of only TWO patients in the … Continue reading

Prescription Drug Act Proves Crucial to Millions of Americans with Chronic Diseases

By Sandra C. Raymond, president and CEO, Lupus Foundation of America Ten years ago, most Americans had never heard of lupus – a chronic autoimmune disease. Today, through education and outreach, more people are becoming familiar with the serious impact lupus has on the health of an estimated 1.5 million Americans. With Congress actively considering … Continue reading

You’re Not Imagining Your Symptoms

By Pat Ivey A number of years ago, my ex-husband’s mother died. This in itself was not unusual, although she was fairly young, in her early 60s. What was notable was that it was only two days before she passed, after she had been in a coma for weeks, when she was finally diagnosed with … Continue reading

Good Bacteria May Hold Key to Madonna’s Health

The secret to Madonna’s staying power may be surprisingly simple: gardening. What the pop star does involves no trowel or soil. Thanks to dishes of fermented soy beans, millet and brown rice prepared by her personal chef, Mayumi Nishimura, Madonna practices a form of inner horticulture — cultivating her intestinal flora in a burgeoning alternative … Continue reading

How to Search for Clinical Trials Close to Home

Click on the link below to search by disease and location. The results will show studies that already are underway, as well as those recruiting participants. Clinicaltrials.gov

Man In Full: A Wrestling Coach Battles the Autoimmune Disease Polymyositis

By Chris Ballard It is a late-spring night in 1997 on frat row in Bloomington, Ind., and the blood is starting to thump in Mike Powell’s temples. Behind him, the wiry dude with the wild eyes is yelling on the steps of the frat house. “Stay the f— off my porch!” he roars. “Come back … Continue reading