This category contains 12 posts

Ask the Harvard Experts: Dermatomyositis Requires More Than Steroids

By Robert Schmerling, M.D. Q: My 70-year old sister has had dermatomyositis for more than a year. Her muscles, joints, skin and lungs have been affected. She has not responded well to treatment with steroids. Are there any alternatives? I read somewhere about transfusions of immune globulin. Is this a reputable treatment? A: Dermatomyositis is … Continue reading

Free American Autoimmune Association Forum to Feature Autoimmune Experts

Newswise — Portland, OR – June 26, 2012: The American Autoimmune Related Diseases Association (AARDA) is hosting a “What Every American Needs to Know About Autoimmune Disease” forum on Saturday, August 4th , 2012. The event will be held at Oregon Health Sciences University’s Doernbecher Children’s Hospital in the Vey Conference Center on the 11th … Continue reading

Aseptic Meningitis and Intravenous Immunoglobulin (IVIG) Therapy

By Nicole Shine I’ve written earlier about the massive migraines my husband experiences that have resulted in regular trips to the ER. Before he contracted dermatomyositis, he never had headaches, much less migraines, so we knew it was related to the disease. Well, not quite. Turns out, the twice-monthly IVIG therapy is behind the migraines. … Continue reading

Buh-Bye Prednisone

By Nicole Shine Great news! My husband’s dermatomyositis is almost in remission! Dr. Louie, the specialist we saw today at Johns Hopkins, said their tests showed little sign of the disease. I was also heartened to learn that that their Myositis Center treats 400 dermatomyositis patients–the most of any medical center in the U.S. If … Continue reading

Meeting With Autoimmune Specialists at Johns Hopkins

By Nicole Shine I’m here Baltimore, Md., with my husband, who has the autoimmune disease dermatomyositis,  so he can be tested–and hopefully treated–by the specialists at Johns Hopkins Myositis Center. Back home, he’s been under the care of a rheumatologist, Dr. N, who acknowledged that my husband is one of only TWO patients in the … Continue reading

Prescription Drug Act Proves Crucial to Millions of Americans with Chronic Diseases

By Sandra C. Raymond, president and CEO, Lupus Foundation of America Ten years ago, most Americans had never heard of lupus – a chronic autoimmune disease. Today, through education and outreach, more people are becoming familiar with the serious impact lupus has on the health of an estimated 1.5 million Americans. With Congress actively considering … Continue reading

You’re Not Imagining Your Symptoms

By Pat Ivey A number of years ago, my ex-husband’s mother died. This in itself was not unusual, although she was fairly young, in her early 60s. What was notable was that it was only two days before she passed, after she had been in a coma for weeks, when she was finally diagnosed with … Continue reading

Young Woman Conquers Dermatomyositis, Runs Marathon

By Owain Johnston-Barnes Running a road race is a challenge Marissa Tucker was told she might never be able to face. But on May 24, nearly 15 years after being diagnosed with a rare autoimmune disorder that limits even simple activities, she plans to tackle her first half-marathon. “It feels great,” she said yesterday. “I … Continue reading

Good Bacteria May Hold Key to Madonna’s Health

The secret to Madonna’s staying power may be surprisingly simple: gardening. What the pop star does involves no trowel or soil. Thanks to dishes of fermented soy beans, millet and brown rice prepared by her personal chef, Mayumi Nishimura, Madonna practices a form of inner horticulture — cultivating her intestinal flora in a burgeoning alternative … Continue reading

How to Search for Clinical Trials Close to Home

Click on the link below to search by disease and location. The results will show studies that already are underway, as well as those recruiting participants.