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Autoimmune Diseases, Dermatomyositis, Myositis, Polymyositis

Meeting With Autoimmune Specialists at Johns Hopkins

By Nicole Shine

Johns Hopkins Hospital

Johns Hopkins Hospital (Photo credit: Wikipedia)

I’m here Baltimore, Md., with my husband, who has the autoimmune disease dermatomyositis,  so he can be tested–and hopefully treated–by the specialists at Johns Hopkins Myositis Center.

Back home, he’s been under the care of a rheumatologist, Dr. N, who acknowledged that my husband is one of only TWO patients in the doctor’s entire practice with dermatomyositis. Dr. N was quite candid, telling us the bulk of his patients have lupus or rheumatoid arthritis. As you can imagine, we decided to seek an expert, and the doctors at Johns Hopkins are supposed to be top-notch for myositis-related autoimmune diseases.

I’m especially glad we’re here because I’ve felt like Dr. N’s answer to all of my husband’s symptoms has been to up the dosage of prednisone. His rash is spreading: prednisone. His legs are weakening: more prednisone. If you’ve read my earlier posts, I hate prednisone. Okay, I’ll get off my soapbox.

So far, these tests are scheduled tomorrow:

-Electromyography

-Pulmonary Function Test

-CT Scan

-MRI

Tomorrow, I’ll post what I learn about these tests, and anything else I find out about the Myositis Center.

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